Contribution to Book
Repurposing Ethnography to Assess Consent Capacity
Research Involving Participants with Cognitive Disability and Difference: Ethics, Autonomy, Inclusion, and Innovation
(2019)
Disciplines
Publication Date
November, 2019
Editor
M. Ariel Cascio and Eric Racine
Publisher
Oxford University Press
Publisher Statement
Research participants who have cognitive disabilities and differences may be considered a vulnerable population. At the same time, they should also be empowered to participate in research in order to foster the growth of knowledge and the improvement of practices. For research participants with cognitive disabilities or differences, participating in research that concerns them follows the Disability Rights Movement's call "Nothing About Us Without Us" and is a vital component of the principle of justice. However, cognitive disabilities and differences may pose challenges to ethical research, particularly with respect to the research ethics principle of autonomy, for a variety of reasons. Several alternative or modified strategies, for example when obtaining informed consent, have been used by researchers.
Citation Information
Megan Wright. "Repurposing Ethnography to Assess Consent Capacity" Research Involving Participants with Cognitive Disability and Difference: Ethics, Autonomy, Inclusion, and Innovation (2019) Available at: http://works.bepress.com/megan-wright/12/