Patient and parent/guardian perspectives on the health care of adults with mental retardationMental retardation
NLM Title AbbreviationMent Retard
DOI of Published Version10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2
AbstractIndividuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.
- Attitude to Health,
- Health Services Research,
- Interviews as Topic,
- Legal Guardians/psychology,
- Mental Retardation/therapy,
- Mentally Disabled Persons/psychology,
- Middle Aged,
- Patient Satisfaction,
- Primary Health Care/standards
Published Article/Book CitationMental retardation, 44:4 (2006) pp.239-248. DOI:10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2.
Citation InformationSarah C. Voss Horrell, William E. MacLean and Virginia M. Conley. "Patient and parent/guardian perspectives on the health care of adults with mental retardation" Mental retardation Vol. 44 Iss. 4 (2006) p. 239 - 248 ISSN: 0047-6765
Available at: http://works.bepress.com/virginia_conley/6/