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Article
Patient and parent/guardian perspectives on the health care of adults with mental retardation
Mental retardation
  • Sarah C. Voss Horrell
  • William E. MacLean, Jr.
  • Virginia M. Conley, University of Iowa
Document Type
Article
Peer Reviewed
1
Publication Date
8-1-2006
NLM Title Abbreviation
Ment Retard
PubMed ID
16834461
DOI of Published Version
10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2
Abstract

Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.

Keywords
  • Adolescent,
  • Adult,
  • Attitude to Health,
  • Health Services Research,
  • Humans,
  • Interviews as Topic,
  • Legal Guardians/psychology,
  • Mental Retardation/therapy,
  • Mentally Disabled Persons/psychology,
  • Middle Aged,
  • Parents/psychology,
  • Patient Satisfaction,
  • Primary Health Care/standards
Published Article/Book Citation
Mental retardation, 44:4 (2006) pp.239-248. DOI:10.1352/0047-6765(2006)44[239:PAGPOT]2.0.CO;2.
Disciplines
Citation Information
Sarah C. Voss Horrell, William E. MacLean and Virginia M. Conley. "Patient and parent/guardian perspectives on the health care of adults with mental retardation" Mental retardation Vol. 44 Iss. 4 (2006) p. 239 - 248 ISSN: 0047-6765
Available at: http://works.bepress.com/virginia_conley/6/