Article
Stewardship of Human Biospecimens, DNA, Genotype, and Clinical Data in the GWAS Era
Annual Review of Genomics and Human Genetics
Document Type
Article
Publication Date
1-1-2009
Keywords
- Biobanks,
- Policy,
- Ethics,
- GWAS population cohorts
Disciplines
Abstract
An ethical quandary is emerging over custodianship of and access to DNA specimens and attached data, clinical and genetic, held in large disease cohort collections. The balance of patients’ rights and science/society's quest for broad open access must be resolved in order to realize the promise of gene association studies of complex human disease. A way forward may be to convene a colloquium of international medical and science organizations charged with developing global consensus guidance and ethical principles for access to and use of genomic biobanks.
ORCID ID
0000-0001-7353-8301
ResearcherID
N-1726-2015
Citation Information
Stephen J. O'Brien. "Stewardship of Human Biospecimens, DNA, Genotype, and Clinical Data in the GWAS Era" Annual Review of Genomics and Human Genetics Vol. 10 (2009) p. 193 - 209 ISSN: 1527-8204 Available at: http://works.bepress.com/stephen-obrien/576/
©2009 by Annual Reviews. All rights reserved