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Article
Not So Private
Duke Law Journal (2022)
  • Stacey A. Tovino, University of Oklahoma College of Law
Abstract
Federal and state laws have long attempted to strike a balance between protecting patient privacy and health information confidentiality on the one hand and supporting important uses and disclosures of health information on the other. To this end, many health laws restrict the use and disclosure of identifiable health data but support the use and disclosure of de-identified data. The goal of health data de-identification is to prevent or minimize informational injuries to identifiable data subjects while allowing the production of aggregate statistics that can be used for biomedical and behavioral research, public health initiatives, informed health care decision making, and
other important activities. Many federal and state laws assume that data are de-identified when direct and indirect demographic identifiers such as names, user names, email addresses, street addresses, and telephone
numbers have been removed. An emerging reidentification literature shows, however, that purportedly de-identified data can—and increasingly will—be reidentified. This Article responds to this concern by presenting an original synthesis of illustrative federal and state identification and de-identification laws that expressly or potentially
apply to health data; identifying significant weaknesses in these laws in light of the developing reidentification literature; proposing theoretical alternatives to outdated identification and de-identification standards,
including alternatives based on the theories of evolving law, nonreidentification, non-collection, non-use, non-disclosure, and nondiscrimination; and offering specific, textual amendments to federal and state data protection laws that incorporate these theoretical alternatives.
Keywords
  • health data,
  • data privacy,
  • reidentification,
  • de-identification,
  • patient privacy,
  • identifiable data
Publication Date
February, 2022
Citation Information
Stacey A. Tovino. "Not So Private" Duke Law Journal Vol. 71 (2022) p. 985
Available at: http://works.bepress.com/stacey-tovino/33/