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Article
Hearing Care and Management Priority Among Parents of Children with Down Syndrome: A Grounded Theory
International Journal of Audiology
  • John J. Whicker, Primary Children's Hospital
  • Karen F. Muñoz, Utah State University
  • Nicole J. Pearson, Utah State University
  • Trenton J. Landon, Utah State University
  • Lauri H. Nelson, Utah State University
  • Karl R White, Utah State University
  • Michael P. Twohig, Utah State University
Document Type
Article
Publication Date
1-1-2020
Abstract

Objective: This study qualitatively explored the factors that influence how parents of children who are Deaf or hard-of-hearing with Down syndrome prioritize hearing care and management and developed an associated theory to explain that priority.

Design: Grounded theory was used for the purposes of this qualitative study. Data were collected using in-depth interviews which were analyzed using a three-tiered qualitative coding process.

Study Sample: Eighteen mothers of children who are Deaf or hard-of-hearing with Down syndrome participated in this study.

Results: The higher the extent of engaged professional support, perception of benefit for child, parent activation, and family engagement, the higher the priority for hearing care and management will likely be among parents of children who are Deaf or hard-of-hearing with Down syndrome.

Conclusions: Understanding how parents of children who are Deaf or hard-of-hearing with Down syndrome decide to prioritize hearing care and management has implications for how hearing health providers and others provide care to parents to enhance priority for hearing-related needs.

Comments

This is an Accepted Manuscript of an article published by Taylor & Francis in the International Journal of Audiology on 2020.

Citation Information
Whicker, J.J., Munoz, K., Pearson, N.J., Landon, T.J., Nelson, L.H., White, K.R., & Twohig, M.P. (in press). Hearing care and management priority among parents of children with Down syndrome: A grounded theory. International Journal of Audiology.