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Article
Development of the HD-Teen Inventory (HD-TI)
Clinical nursing research
  • Martha Driessnack, University of Iowa
  • Janet K. Williams, University of Iowa
  • J. J. Barnette
  • K. J. Sparbel
  • J. S. Paulsen
Document Type
Article
Peer Reviewed
1
Publication Date
6-1-2011
NLM Title Abbreviation
Clin Nurs Res
PubMed ID
21632913
DOI of Published Version
10.1177/1054773811409397
Abstract
Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk for HD but also are witness to its onset and devastating clinical progression as their parent declines. To date, no mechanism has been developed to direct health care providers to the atypical adolescent experiences of these teens. The purpose of this report is to describe the process of developing the HD-Teen Inventory clinical assessment tool. Forty-eight teens and young adults from 19 U.S. states participated in the evaluation of the HD-Teen Inventory tool. Following item analysis, the number of items was reduced and item frequency and reaction scales were combined, based on the strong correlation (r = .94). The resultant tool contains 15 inventory and 2 open-ended response items. The HD-Teen Inventory emerged as a more compact and efficient tool for identifying the most salient concerns of at-risk teens in HD families in research and/or clinical practice.
Disciplines
Citation Information
Martha Driessnack, Janet K. Williams, J. J. Barnette, K. J. Sparbel, et al.. "Development of the HD-Teen Inventory (HD-TI)" Clinical nursing research (2011) ISSN: 1552-3799
Available at: http://works.bepress.com/martha_driessnack/30/