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Article
“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research
American Journal on Intellectual and Developmental Disabilities (2012)
  • Katherine McDonald, Syracuse University
Abstract
Respect is central to ethical guidelines for research. The scientific community has long debated, and at times disagreed on, how to demonstrate respect in research with adults with intellectual and developmental disabilities. To illuminate the voices of those most affected, the author studies the views of adults with intellectual and developmental disabilities on respect in research. Findings are consistent with disability rights’ ideas and indicate that adults with intellectual and developmental disabilities have much to contribute to the discussion, that they value participating, and that they agree with calls to focus on human rights and dignity. Notably, participants spoke at lengths about the nature of interactions between researchers and participants. Implications are discussed, including how to infuse research standards with community-supported values and preferences.
Keywords
  • respect,
  • research participation,
  • inclusion,
  • people with intellectual and developmental disabilities
Publication Date
2012
Citation Information
Katherine McDonald. "“We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research" American Journal on Intellectual and Developmental Disabilities Vol. 117 (2012)
Available at: http://works.bepress.com/katherine_mcdonald/24/