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Contribution to Book
The Role of the Federal Government in Supporting State Newborn Screening Programs
Ethics and Newborn Genetic Screening: New Technologies, New Challenges (2009)
  • Michele Lloyd-Puryear, U.S. Department of Health and Human Services
  • Bradford L. Therrell, University of Texas Health Science Center
  • Marie Y. Mann, U.S. Department of Health and Human Services
  • James R. Eckman, Emory University School of Medicine
  • Joseph Telfair, Georgia Southern University
Abstract
Prior to employment at Georgia Southern University, Joseph Telfair authored "The Role of the Federal Government in Supporting State Newborn Screening Programs" in Ethics and Newborn Genetic Screening: New Technologies, New Challenges.

Book Summary: The United States has the first and the farthest-reaching newborn genetic screening program in the world. In recent years, individual states have expanded their newborn screening programs to include many more genetic conditions, as new medical knowledge and new testing technologies have become available. The contributors to this provocative collection study the complex ethical and policy challenges present in the changing newborn screening environment and offer guidance to professionals, policymakers, and the general public.

Experts from the fields of bioethics, genetics, pediatrics, public health, health policy, law, and political science identify and analyze four social and ethical issues critical to newborn screening policy: the distribution of costs and benefits; information, consent, and privacy; consultation and decision making; and race, ethnicity, and socioeconomic status. In the process, the contributors capture the difficulties of trying to forge ethical public policy at the intersection of parental concerns, new technologies, and economic interests.
Keywords
  • Role,
  • Federal government,
  • State newborn,
  • Screening programs
Publication Date
May, 2009
Editor
Mary Ann Baily and Thomas H. Murray
Publisher
Johns Hopkins University Press
ISBN
9780801891519
Citation Information
Michele Lloyd-Puryear, Bradford L. Therrell, Marie Y. Mann, James R. Eckman, et al.. "The Role of the Federal Government in Supporting State Newborn Screening Programs" Ethics and Newborn Genetic Screening: New Technologies, New Challenges (2009)
Available at: http://works.bepress.com/joseph_telfair/9/