Presentation
National Newborn Screening Follow-up Initiative: Report after Year 1
National Sickle Cell Program Annual Meeting
(2004)
Abstract
For over three decades the outcome of NBS work has been a better understanding of the epidemiology of sickle hemoglobinopathies in newborns, consequent life saving care protocols, and effective provider & public education.
Despite well funded projects, NBS follow-up efforts have been and remains problematic. Very little has been documented about the effectiveness of follow-up of NBS. A joint 3 year effort between the SCDAA and the MCHB of HRSA began in 2002 with their SCD NBS.
Keywords
- NBS,
- SCD,
- Sickle cell disease
Disciplines
Publication Date
April, 2004
Location
Los Angeles, CA
Citation Information
Joseph Telfair and Sonya I. Ross. "National Newborn Screening Follow-up Initiative: Report after Year 1" National Sickle Cell Program Annual Meeting (2004) Available at: http://works.bepress.com/joseph_telfair/118/