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Protecting Subjects' Interests in Genetics Research
Center for Bioethics Papers
  • Jon F Merz, University of Pennsylvania
  • David Magnus, University of Pennsylvania
  • Mildred K Cho, Stanford University
  • Arthur L. Caplan, University of Pennsylvania
Document Type
Journal Article
Date of this Version
Biomedical researchers often assume that sponsors, subjects, families, and disease-associated advocacy groups contribute to research solely because of altruism. This view fails to capture the diverse interests of many participants in the emerging research enterprise. In the past two decades, patient groups have become increasingly active in the promotion and facilitation of genetics research. Simultaneously, a significant shift of academic biomedical science toward commercialization has occurred, spurred by U.S. federal policy changes.
Reprinted from The American Journal of Human Genetics, Volume 70, Issue 4, April 2002, pages 965-971.
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Citation Information
Jon F Merz, David Magnus, Mildred K Cho and Arthur L. Caplan. "Protecting Subjects' Interests in Genetics Research" (2002)
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