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Quality of Life and Self-Determination: Youth with Chronic Health Conditions Make the Connection
Applied Research Quality Life
  • Janette McDougall, Western University
  • Patricia Baldwin, Thames Valley Children’s Centre
  • Jan Evans, Thames Valley Children’s Centre
  • Megan Nichols, Thames Valley Children’s Centre
  • Nicole Ehterington, Western University
  • Virginia Wright, Bloorview Research Institute
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While optimizing quality of life(QOL) is a key goal of rehabilitation care,no previous study has reported on what ‘QOL’ means to youth with chronic health conditions. In addition, no qualitative studies have explored the relationship between QOL and self-determination(SD). Objectives of this qualitative study were to examine: what the terms ‘quality of life’ and ‘self-determination’ mean to youth with chronic conditions; the factors these youth think are linked with these concepts; the relationship they see between concepts, the types of future goals youth have and how they view the connection between their SD and these goals. A descriptive methodology was used. A purposive sample of 15 youth aged 15 to 20 years was obtained. Youth had cerebral palsy, a central nervous system disorder, or autism spectrum disorder. Semi-structured interviews were conducted first, followed by a focus group. Line-by-line coding of transcripts was completed, codes were collapsed into categories, and themes identified. Participants viewed QOL as an overarching personal evaluation of their life, and used


This is an open access article originally published by Applied Research Quality Life.

Citation Information
Janette McDougall, Patricia Baldwin, Jan Evans, Megan Nichols, et al.. "Quality of Life and Self-Determination: Youth with Chronic Health Conditions Make the Connection" Applied Research Quality Life Vol. 11 (2015) p. 571 - 599
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