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Article
Spirituality and Religiosity in Adolescents Living with Sickle Cell Disease
Western Journal of Nursing Research
  • Dora L. Clayton-Jones, University of Wisconsin-Milwaukee
  • Kristin Haglund, Marquette University
  • Ruth Belknap, Marquette University
  • Jame Schaefer, Marquette University
  • Alexis A. Thompson, Northwestern University
Document Type
Article
Language
eng
Publication Date
6-1-2016
Publisher
SAGE Publications
Original Item ID
DOI: 10.1177/0193945915625065
Abstract

This study purports to address paucity in the literature regarding how adolescents with sickle cell disease (SCD) describe and experience spirituality and religiosity (S/R). This was a qualitative descriptive study. Two semi-structured interviews were conducted with nine adolescents (Mage = 16.2 years). Data were analyzed using a template analysis style and a concurrent analysis process of data reduction. Three major themes encompassed the participants’ descriptions of the relationships between S/R, health and illness in their lives including S/R as sources for coping, influence of S/R beliefs on health and illness, and sharing S/R with Health Care Providers (HCPs). S/R as coping mechanisms included six threads: interconnecting with God, interconnecting with others, interconnecting with creative arts, scriptural metanarratives, transcendent experiences, and acceptance and finding meaning. Expectations of health providers included two threads: Religiosity is private/personal and sharing spiritual and religious beliefs is risky. S/R are particularly salient for adolescents with SCD.

Comments

Accepted version. Western Journal of Nursing Research, Vol. 38, No. 6 (June 2016): 686-703. DOI. © 2016 SAGE Publications. Used with permission.

Citation Information
Dora L. Clayton-Jones, Kristin Haglund, Ruth Belknap, Jame Schaefer, et al.. "Spirituality and Religiosity in Adolescents Living with Sickle Cell Disease" Western Journal of Nursing Research (2016) ISSN: 0193-9459
Available at: http://works.bepress.com/jame-schaefer/47/