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Article
Patterns and Predictors of Patient and Caregiver Engagement in Heart Failure Care: A Multi-Level Dyadic Study
International Journal of Nursing Studies
  • Christopher S. Lee, Oregon Health & Science University
  • Ercole Vellone, University of Rome Tor Vergata
  • Karen S. Lyons, Oregon Health & Science University
  • Antonello Cocchieri, University of Rome Tor Vergata
  • Julie T. Bidwell, Oregon Health & Science University
  • Fabio D'Agostino, University of Rome Tor Vergata
  • Shirin O. Hiatt, Oregon Health & Science University
  • Rosaria Alvaro, University of Rome Tor Vergata
  • Harleah G. Buck, Pennsylvania State University
  • Barbara Riegel, University of Pennsylvania
Document Type
Article
Publication Date
2-1-2015
Keywords
  • caregivers,
  • family,
  • heart failure,
  • self-care
Digital Object Identifier (DOI)
http://dx.doi.org/10.1016/j.ijnurstu.2014.11.005
Abstract

Background: Heart failure is a burdensome clinical syndrome, and patients and their caregivers are responsible for the vast majority of heart failure care.

Objectives: This study aimed to characterize naturally occurring archetypes of patient-caregiver dyads with respect to patient and caregiver contributions to heart failure self-care, and to identify patient-, caregiver- and dyadic-level determinants thereof.

Design: Dyadic analysis of cross-sectional data on patients and their caregivers.

Setting: Outpatient heart failure clinics in 28 Italian provinces.

Participants: 509 Italian heart failure patients and their primary caregivers.

Methods: Multilevel and mixture modeling were used to generate dyadic averages and incongruence in patient and caregiver contributions to heart failure self-care and identify common dyadic archetypes, respectively.

Results: Three distinct archetypes were observed. 22.4% of dyads were labeled as novice and complementary because patients and caregivers contributed to different aspects of heart failure self-care that was generally poor; these dyads were predominantly older adults with less severe heart failure and their adult child caregivers. 56.4% of dyads were labeled as inconsistent and compensatory because caregivers reported greater contributions to the areas of self-care most insufficient on the part of the patients; patients in these dyads had the highest prevalence of hospitalizations for heart failure in the past year and the fewest limitations to performing activities of daily living independently. Finally, 21.2% of dyads were labeled as expert and collaborative because of high contributions to all aspects of heart failure self-care, the best relationship quality and lowest caregiver strain compared with the other archetypes; patients in this archetype were likely the sickest because they also had the worst heart failure-related quality of life.

Conclusions: Three distinct archetypes of dyadic contributions to heart failure care were observed that represent a gradient in the level of contributions to self-care, in addition to different approaches to working together to manage heart failure. Interventions and clinical programs that involve heart failure dyads should tailor strategies to take into consideration these distinct archetypes and their attributes.

Citation / Publisher Attribution

International Journal of Nursing Studies, v. 52, issue 2, p. 588-597

Citation Information
Christopher S. Lee, Ercole Vellone, Karen S. Lyons, Antonello Cocchieri, et al.. "Patterns and Predictors of Patient and Caregiver Engagement in Heart Failure Care: A Multi-Level Dyadic Study" International Journal of Nursing Studies Vol. 52 Iss. 2 (2015) p. 588 - 597
Available at: http://works.bepress.com/harleah-buck/24/