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Article
Quality of Life in Stroke Survivor-Caregiver Dyads: A New Conceptual Framework and Longitudinal Study Protocol
Journal of Advanced Nursing
  • Serenella Savini, Sapienza University
  • Harleah G. Buck, Pennsylvania State University
  • Victoria Vaughan Dickson, New York University
  • Silvio Simeone, University of Rome Tor Vergata
  • Gianluca Pucciarelli, University of Rome Tor Vergata
  • Roberta Fida, Sapienza University
  • Maria Matarese, University Campus Bio-Medico
  • Rosaria Alvaro, University of Rome Tor Vergata
  • Ercole Vellone, University of Rome Tor Vergata
Document Type
Article
Publication Date
3-1-2015
Keywords
  • conceptual framework,
  • dyad,
  • longitudinal study,
  • nursing,
  • quality of life,
  • stroke,
  • stroke caregiver,
  • stroke survivor,
  • study protocol
Digital Object Identifier (DOI)
http://dx.doi.org/10.1111/jan.12524
Abstract

Aim. To describe a new conceptual framework and the research protocol of a study designed to examine the quality of life in stroke survivor-caregiver dyads.

Background. Stroke has a significant impact on the patient-caregiver dyad. Few studies have been guided by a specific conceptual framework which considers the interactions among pre-existing situations prior to stroke, the new situation caused by the stroke and the moderating effects of environmental and caregiver-related variables.

Design. Longitudinal study.

Methods. A sample of stroke survivor-caregiver dyads will be enrolled at patient discharge from rehabilitation hospitals and will be surveyed every 3 months for 1-year. Hypotheses generated from the conceptual framework will test predictors, mediators and moderators of stroke survivor and caregiver quality of life from the pre-existing situation prior to the stroke, the new situation mediation poststroke and situation moderators. The study is supported by a grant from the Centre of Excellence for Nursing Scholarship, Rome, December 2013.

Discussion. This study seeks to identify variables in the pre-existing situation prior to the stroke (e.g. living condition), the new situation mediation poststroke (e.g. type of stroke and caregiver burden) as well as situation moderators (e.g. social support) that influence stroke survivor-caregiver dyad's quality of life across the stroke trajectory. Also, the study will inform clinical practice and research by identifying variables that are potentially modifiable and therefore amenable to intervention. The proposed framework will also be helpful for future research focused on stroke survivor-caregiver dyads.

Citation / Publisher Attribution

Journal of Advanced Nursing, v. 71, issue 3, p. 676-687

Citation Information
Serenella Savini, Harleah G. Buck, Victoria Vaughan Dickson, Silvio Simeone, et al.. "Quality of Life in Stroke Survivor-Caregiver Dyads: A New Conceptual Framework and Longitudinal Study Protocol" Journal of Advanced Nursing Vol. 71 Iss. 3 (2015) p. 676 - 687
Available at: http://works.bepress.com/harleah-buck/21/