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Article
Everything They Were Discussing, We Were Already Doing: Hospice Heart Failure Caregivers Reflect on a Palliative Caregiving Intervention
Journal of Hospice & Palliative Nursing
  • Harleah G. Buck, Pennsylvania State University
  • Cheryl Zambroski, University of South Florida
  • Chris Garrison, St Petersburg College Department of Nursing
  • Susan C. McMillan, University of South Florida
Document Type
Article
Publication Date
6-1-2013
Keywords
  • caregivers,
  • intervention,
  • palliative care,
  • qualitative
Digital Object Identifier (DOI)
http://dx.doi.org/10.1097/NJH.0b013e3182777738
Abstract
There is little to no evidence concerning the efficacy of heart failure caregiver interventions in hospice populations. The objective of this study was to examine heart failure caregivers’ responses to a hospice caregiving intervention and elicit recommendations for future interventions. A qualitative descriptive design was used with a one-time semistructured interview conducted within 2 weeks of completing the intervention. The interview began with general questions related to the helpfulness of the intervention and continued with probes regarding the particular parts of the intervention used to explore more deeply the caregivers’ perceptions. Analysis involved constant comparison of the interview transcriptions according to established approaches with codes generated through a line-by-line reading of the interviews by two investigators. A sample (n = 7) made up of spouses, adult children, and sibling caregivers responded to the intervention based on their length of caregiving (with early caregivers embracing the intervention, experienced caregivers ignoring it) and experience with hospice. They were able to give detailed feedback and make recommendations for future studies—targeting less experienced caregivers, discussing multimorbid symptom management, and streamlining the information and contact with help. Heart failure caregivers recommend providing interventions earlier (or upstream) in the disease trajectory.
Citation / Publisher Attribution

Journal of Hospice & Palliative Nursing, v. 15, issue 4, p. 218-224

Citation Information
Harleah G. Buck, Cheryl Zambroski, Chris Garrison and Susan C. McMillan. "Everything They Were Discussing, We Were Already Doing: Hospice Heart Failure Caregivers Reflect on a Palliative Caregiving Intervention" Journal of Hospice & Palliative Nursing Vol. 15 Iss. 4 (2013) p. 218 - 224
Available at: http://works.bepress.com/harleah-buck/11/