"The Reckoning: The Return of Genomic Results to 1444 Participants Across the eMERGE3 Network" by Ellen W. Clayton

Selected Works of Ellen Wright Clayton

Article

The Reckoning: The Return of Genomic Results to 1444 Participants Across the eMERGE3 Network

Genetics in Medicine

Ellen W. Clayton, Vanderbilt University Law School
Kathleen A. Leppig, Kaiser Permanente of Washington, Seattle, WA
et al.

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Document Type

Article

Publication Date

1-1-2022

Keywords

genetics,
medicine,
genetic counseling

Disciplines

Health Law and Policy and
Law

Abstract

The goal of Electronic Medical Records and Genomics (eMERGE) Phase III Network was to return actionable sequence variants to 25,084 consenting participants from 10 different health care institutions across the United States. The purpose of this study was to evaluate system-based issues relating to the return of results (RoR) disclosure process for clinical grade research genomic tests to eMERGE3 participants.

Citation Information

Ellen W. Clayton, Kathleen A. Leppig and et al.. "The Reckoning: The Return of Genomic Results to 1444 Participants Across the eMERGE3 Network" Genetics in Medicine Iss. Feb. 23, 2022 (2022) p. https://doi.org/10.1016/j.gim.2022.01.015 ISSN: 1530-0366
Available at: http://works.bepress.com/ellen-clayton/34/