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How Parents Use Health Information, with the Aid of a Knowledge Broker, When Living with and Caring for Their Young Children with Cerebral Palsy
CERI Annual Research Symposium
  • Stephanie Lagosky, The University of Western Ontario
  • Doreen Bartlett, The University of Western Ontario
  • Lynn Shaw, The University of Western Ontario
Start Date
5-10-2011 12:00 PM
End Date
5-10-2011 12:45 PM
Abstract
This research aims to understand, with the aid of a knowledge broker (KB), how parents use knowledge and dissemination materials (such as those developed from the Move & PLAY study) when living with and caring for young children with cerebral palsy (CP). This research is being conducted under a grounded theory design and will take place over a 9 to 12 month period. We have recruited a KB from the Thames Valley Children’s Centre (TVCC), who will be working alongside the research team to conduct an introductory workshop to introduce dissemination materials from the Move & PLAY study to parents. However, our research will not be limited to the use of Move & PLAY materials, as we are interested in all types of knowledge use. Ten to12 parents of children with CP will be sampled from this workshop to participate in our research. Demographic data will be collected from all participants, after which the KB will be made available to parents on a weekly basis, over a three month period. After three months, a focus group will be held with the parents to understand the breadth of their knowledge use. Select in‐depth interviews will be held with parents to understand the depth of such knowledge use. A weekly log will be kept by the KB, who will participate in interviews at the end of their involvement with parents to discern their role in this process. Audiotaped data will be transcribed and analyzed to produce a model on how parents use information in their daily lives. This model will be an important addition to the field of knowledge translation and childhood rehabilitation, as it has implications for the facilitation of knowledge use in the everyday lives of families with children with disabilities.
Citation Information
Stephanie Lagosky, Doreen Bartlett and Lynn Shaw. "How Parents Use Health Information, with the Aid of a Knowledge Broker, When Living with and Caring for Their Young Children with Cerebral Palsy" (2011)
Available at: http://works.bepress.com/drlynn/110/