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Early Assessment and Support Alliance Connections: Community-Based Participatory Research to Develop a Peer-Based Early Psychosis Web Resource with Young Adults
Progress in Community Health Partnerships-Research Education and Action
  • Dora Raymaker, Portland State University
  • Tamara G. Sale, Portland State University
  • Mariam Rija, Portland State University
  • Nicholas Buekea, Portland State University
  • Nybelle Caruso, Portland State University
  • Ryan P. Melton, Portland State University
  • Natalie Cohrs, Portland State University
  • Veronica Gould, Portland State University
  • Christina Wall, Portland State University
  • Mirah Scharer, Portland State University
Document Type
Citation
Publication Date
1-1-2020
Abstract

Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research.

Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, webbased, recovery resource.

Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it.

Lessons Learned: The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one's self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one's self and peers.

Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult coresearchers. We strongly recommend including YA who have experienced EP as co-researchers.

Rights

Copyright © 2020 Johns Hopkins University Press

Locate the Document

https://doi.org/10.1353/cpr.2020.0052

DOI
10.1353/cpr.2020.0052
Persistent Identifier
https://archives.pdx.edu/ds/psu/34824
Citation Information
Progress in Community Health Partnerships: Research, Education, and Action, Volume 14, Issue 4, Winter 2020, pp. 471-480 https://doi.org/10.1353/cpr.2020.0052