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Article
Collaboration Strategies in Non-Traditional CBPR Partnerships: Lessons from an Academic-Community Partnership with Autistic Self-Advocates
Research, Education, and Action
  • Christina Nicolaidis, Portland State University
  • Dora Raymaker, Autistic Self Advocacy Network
  • Katherine McDonald, Portland State University
  • Sebastian Dern, Academic Autistic Spectrum Partnership In Research and Education
  • Elesia Ashkenazy, Autistic Self Advocacy Network
  • Cody Boisclair, Academic Autistic Spectrum Partnership In Research and Education
  • Scott Robertson, Autistic Self Advocacy Network
  • Amelia E.V. Baggs, Academic Autistic Spectrum Partnership In Research and Education
Document Type
Article
Publication Date
1-1-2011
Subjects
  • Autism spectrum disorders -- Treatment,
  • Autistic people -- Services for,
  • Public health -- Research -- Methodology,
  • Public health -- Research -- United States -- Citizen participation,
  • Social medicine,
  • Community health services
Disciplines
Abstract

Background: Most community-based participatory research (CBPR) projects involve local communities defined by race, ethnicity, geography, or occupation. Autistic self-advocates, a geographically dispersed community defined by disability, experience issues in research similar to those expressed by more traditional minorities.

Objectives: We sought to build an academic-community partnership that uses CBPR to improve the lives of people on the autistic spectrum.

Methods: The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) includes representatives from academic, self-advocate, family, and professional communities. We are currently conducting several studies about the health care experiences and well-being of autistic adults.

Lessons Learned: We have learned a number of strategies that integrate technology and process to successfully equalize power and accommodate diverse communication and collaboration needs.

Conclusions: CBPR can be conducted successfully with autistic self-advocates. Our strategies may be useful to other CBPR partnerships, especially ones that cannot meet in person or that include people with diverse communication needs.

Rights

© 2011 The Johns Hopkins University Press

Description

This article first appeared in Progress in Community Health Partnerships: Research, Education, and Action, Volume 5, Issue 2, Summer 2011, pages 143-150.

DOI
10.1353/cpr.2011.0022
Persistent Identifier
http://archives.pdx.edu/ds/psu/9412
Citation Information
Nicolaidis, C., Raymaker, D., McDonald, K, Dem, S., Ashkenazy, E., Boisclair. W.C., Robertson, S, Baggs, A. "Collaboration strategies in non-traditional CBPR partnerships: Lessons from an academic-community partnership with autistic self-advocates." Progress in Community Health Partnerships: Research, Education, and Action. 2011:5(2); 143-150.