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Final Negotiations: A Story of Love, Loss, and Chronic Illness
  • Carolyn S Ellis, University of South Florida

"This is a remarkably revealing portrait of a couple dealing with a debilitating chronic illness." --Kirkus Reviews "In this deeply poignant and personal text Carolyn Ellis offers a brilliant account of how the lingering death of a loved one creates the occasion for radical redefinitions of self. Death is a shared project. Loved ones do not always go gently into the good night. This is a story of death, identity, and love. In this work Ellis gives Gene Weinstein the greatest gift of all, a loving death. In so doing, she shows all of us how to do the same." --Norman K. Denzin, University of Illinois at Urbana-Champaign "Final Negotiations makes a unique contribution to sociology, the helping professions, and to families struggling with chronic illness. There is no other sociology book like it: Carolyn Ellis creates an intimate conversation about lived experience, relating, feeling, and working. She tells us two interrelated narratives--the story of her nine-year relationship with a partner who died of emphysema and the story of the writing of Final Negotiations. We are invited into a dialectics of intimacy to experience with her the complexly layered and nuanced emotions around attachment, love, power, jealousy, anger, care-taking, loss, and recovery. In a brilliant and courageous conclusion, we see how writing with passion about the Self, connecting sociology with literature, breaking genre boundaries are acts of recovery, release, and love. The reader will be treated to a most original, nervy, and memorable book." --Laurel Richardson, Ohio State University

  • Autoethnography,
  • Ethnography,
  • Narrative,
  • Loss,
  • Grief,
  • Illness,
  • Biography,
  • Autobiography,
  • Health Policy,
  • Health Communication,
  • Social Medicine,
  • Family Relationships,
  • Chronically Ill,
  • Health
Publication Date
Temple University Press
Citation Information
Carolyn S Ellis. Final Negotiations: A Story of Love, Loss, and Chronic Illness. Philadelphia, PA(1995)
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