Article
A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome
Journal of Genetic Counseling
(2017)
Abstract
Previous research has identified twenty-six factors that may affect pregnancy management decisions following prenatal diagnosis of DS; however, there is no consensus about the relative importance or effects of these factors. In order to better understand patient decision-making, we conducted expansive cognitive interviews with nine former patients who received a prenatal diagnosis of DS. Our results suggest that patients attached unique meanings to factors influencing decision-making regardless of the pregnancy outcome. Nineteen of the twenty-six factors previously studied and four novel factors (rationale for testing, information quality, pregnancy experience, and perception of parenting abilities and goals) were found to be important to decision-making. We argue that qualitative studies can help characterize the complexity of decision-making following prenatal diagnosis of DS.
Keywords
- Down syndrome,
- Prenatal testing,
- Decision-making,
- Termination,
- Adoption
Disciplines
Publication Date
August 1, 2017
DOI
10.1007/s10897-016-0061-8
Citation Information
Amy R. Reed and Kathryn L. Berrier. "A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome" Journal of Genetic Counseling Vol. 26 Iss. 4 (2017) p. 1 - 15 Available at: http://works.bepress.com/amy-reed/2/