Patient and parent/guardian perspectives on the health care of adults with mental retardation
Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/ guardians focused on more peripheral or abstract issues related to the delivery of primary care.
S. C. Voss Horrell, W. E. Maclean Jr., and Virginia M. Conley. "Patient and parent/guardian perspectives on the health care of adults with mental retardation" Mental Retardation 44.4 (2006): 239-248.
Available at: http://works.bepress.com/virginia_conley/6
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