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<title>Margaret Sebern</title>
<copyright>Copyright (c) 2012  All rights reserved.</copyright>
<link>http://works.bepress.com/margaret_sebern</link>
<description>Recent documents in Margaret Sebern</description>
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<title>Refinement of the Shared Care Instrument-Revised: A Measure of a Family Care Interaction</title>
<link>http://works.bepress.com/margaret_sebern/12</link>
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<pubDate>Fri, 09 Nov 2012 07:30:29 PST</pubDate>
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	<p>This study’s purpose was to evaluate the psychometric properties of the Shared Care Instrument-Revised (SCI-R) in a sample of family care dyads. The SCI-R was developed to measure the construct of shared care, which is a system of three constructs (communication, decision making, reciprocity) used in family care to exchange support. An important aspect of evaluating the SCI-R was to create a measure that is statistically sound and meaningful for patient and caregivers. Surveys were mailed to randomly selected home health dyads, which included 223 patients and 220 caregivers. Reliability and confirmatory factor analysis, and concurrent validity were examined. Internal consistency reliability of the patient subscales ranged from 0.74 to 0.76, and from 0.72 to 0.78 for caregiver sub-scales. Factor analysis supported the underlying theoretical basis of the SCI-R. Construct validity also was supported using the hypothesis-testing approach. One major challenge in family care research is to develop methods and tools to study the dynamic characteristics of close relationships. The findings from this study support further use of SCI-R to study how shared care facilitates the exchange of support and the influence shared care has on outcomes for both patients and caregivers.</p>

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<author>Margaret Sebern</author>


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<title>Creating Technology-enhanced Practice: A University-Home Care-Corporate Alliance</title>
<link>http://works.bepress.com/margaret_sebern/11</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/11</guid>
<pubDate>Fri, 09 Nov 2012 07:30:28 PST</pubDate>
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	<p>Insuring full benefit of consumer health informatics innovations requires integrating the technology into nursing practice, yet many valuable innovations are developed in research projects and never reach full integration. To avoid this outcome, a team of researchers partnered with a home care agency’s staff and patients and their corporate parent’s Information Systems and Research group to create a Technology-Enhanced Practice (TEP) designed to enhance care of home bound patients and their family care givers. The technology core of TEP, the HeartCare2 web site, was built in a collaborative process and deployed within the existing patient portal of the clinical partner. This paper describes the innovation and the experience of bringing it into full operation.</p>

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<author>Patricia Flatley Brennan et al.</author>


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<title>Psychometric Evaluation of the Shared Care Instrument in a Sample of Home Health Care Family Dyads</title>
<link>http://works.bepress.com/margaret_sebern/10</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/10</guid>
<pubDate>Fri, 09 Nov 2012 07:30:26 PST</pubDate>
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	<p>Researchers have studied negative effects of caregiving on a family caregiver; however, less is known about positive aspects of exchanging assistance for both members of a family caregiving dyad. In a previous naturalistic inquiry the author indentified a basis for studying caregiving interactions was a construct called shared care. The three components of shared care identified in the naturalistic inquiry were communication, decision making, and reciprocity. The Shared Care Instrument (SCI) was developed to measure the construct. The purpose of this study was to assess the psychometric properties of the SCI, and to assess its construct and criterion-related validity. A sample of home care family dyads (110 patients and 109 family members) returned usable survey questionnaires. Results indicated the Cronbach’s alphas for the patient group for the SCI subscales ranged from .78 to .84, and .77 to .79 for family members. Factor analysis supported the underlying theoretical basis and factor structure of the SCI. Criterion-related validity was also supported. Therefore, the results of this study provide initial evidence for the reliability and validity of the SCI for use with family caregiving dyads. The findings support the need for additional testing of the SCI.</p>

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<author>Margaret Sebern</author>


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<title>Explication of the Construct of Shared Care and the Prevention of Pressure Ulcers in Home Health Care</title>
<link>http://works.bepress.com/margaret_sebern/9</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/9</guid>
<pubDate>Fri, 09 Nov 2012 07:30:25 PST</pubDate>
<description>
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	<p>The purpose of this investigation was to render a more complete understanding of subjective perceptions of pressure ulcers from the perspective of family dyads, and to study the effect of these subjective experiences on preventive behaviors and pressure ulcer outcomes. A naturalistic inquiry, combined with objective measures, was used. Twenty-one dyads participated in four in-depth interviews to explore how they mentally represented and responded to the risk of pressure ulcers. Through the process of concept development, a lay representation of pressure ulcers was developed. This process produced a new concept, identified as “shared care,” that explained how the dyads interaction influenced preventive behavior. Shared care consists of three elements: communication of symptoms, decisions about how to respond to symptoms, and appraisals of reciprocity. Two contrasting patterns of care were identified: shared and directed/discrepant. In the shared care group, 10 patients were at risk for pressure ulcers but only 4 developed ulcers. In this discrepant care group, 3 patients were at risk and 2 developed pressure ulcers. Shared care was a pattern of interaction used successfully by family members to prevent pressure ulcers in patients at risk.</p>

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<author>Margaret Sebern</author>


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<title>Shared Care, Elder and Family Member Skills Used to Manage Burden</title>
<link>http://works.bepress.com/margaret_sebern/8</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/8</guid>
<pubDate>Fri, 09 Nov 2012 07:30:23 PST</pubDate>
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	<p><strong>Aim</strong>. The aim of this paper is to further develop the construct of Shared Care by comparing and contrasting it to related research, and to show how the construct can be used to guide research and practice.</p>
<p><strong>Background</strong>. While researchers have identified negative outcomes for family caregivers caused by providing care, less is known about positive aspects of family care for both members of a family dyad. Understanding family care relationships is important to nurses because family participation in the care of chronically ill elders is necessary to achieve optimal outcomes from nursing interventions. A previous naturalistic inquiry identified a new construct, Shared Care, which was used to describe a family care interaction that contributed to positive care outcomes.</p>
<p><strong>Methods</strong>. A literature review was carried out using the databases Medline, CINAHL, and Psych-info and the keywords home care, care receiver, disability, family, communication, decision-making and reciprocity. The results of the review were integrated to suggest how Shared Care could be used to study care difficulties and guide interventions.</p>
<p><strong>Results</strong>. The literature confirmed the importance of dyad relationships in family care. Shared Care extended previous conceptualizations of family care by capturing three critical components: communication, decision-making, and reciprocity. Shared Care provides a structure to expand the conceptualization of family care to include both members of a care dyad and account for positive and negative aspects of care.</p>
<p><strong>Conclusions</strong>. The extended view provided by the construct of Shared Care offers practitioners and scholars tools to use in the context of our ageing population to improve the effectiveness of family care relationships.</p>

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<author>Margaret Sebern</author>


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<title>Technology-Enhanced Practice for Patients with Chronic Cardiac Disease: Home Implementation and Evaluation</title>
<link>http://works.bepress.com/margaret_sebern/7</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/7</guid>
<pubDate>Fri, 09 Nov 2012 07:30:22 PST</pubDate>
<description>
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	<p><strong>Objective:</strong> This 3-year field experiment engaged 60 nurses and 282 patients in the design and evaluation of an innovative home-care nursing model, referred to as technology-enhanced practice (TEP).</p>
<p><strong>Methods:</strong> Nurses using TEP augmented the usual care with a web-based resource (HeartCareII) that provided patients with self-management information, self-monitoring tools, and messaging services.</p>
<p><strong>Results:</strong> Patients exposed to TEP demonstrated better quality of life and self-management of chronic heart disease during the first 4 weeks, and were no more likely than patients in usual care to make unplanned visits to a clinician or hospital. Both groups demonstrated the same long-term symptom management and achievements in health status.</p>
<p><strong>Conclusion:</strong> This project provides new evidence that the purposeful creation of patient-tailored web resources within a hospital portal is possible; that nurses have difficulty with modifying their practice routines, even with a highly-tailored web resource; and that the benefits of this intervention are more discernable in the early postdischarge stages of care.</p>

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<author>Patricia Flatley Brennan et al.</author>


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<title>Shared Care Instrument</title>
<link>http://works.bepress.com/margaret_sebern/6</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/6</guid>
<pubDate>Fri, 09 Nov 2012 07:30:20 PST</pubDate>
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<author>Margaret Sebern</author>


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<title>Dyadic Relationship Scale: A Measure of the Impact of the Provision and Receipt of Family Care</title>
<link>http://works.bepress.com/margaret_sebern/5</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/5</guid>
<pubDate>Fri, 09 Nov 2012 07:30:18 PST</pubDate>
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	<p><strong>Purpose:</strong> This study evaluated the psychometric properties of the Dyadic Relationship Scale (DRS), which measures negative and positive dyadic interactions from the perspective of both the patient and the family caregiver. An important aspect of evaluating the DRS was that it be statistically sound and meaningful for both members of the dyad. <strong>Design and Methods:</strong> The study used a cross-sectional design. Survey packages were mailed to home health care patients and their family caregivers. The unit of analysis was the dyad, and exploratory and confirmatory factor analyses were conducted. We examined the reliability, discriminant, and concurrent validities of the instrument. <strong>Results:</strong> The data supported a two-factor DRS that included negative dyadic strain (patient α = .84; caregiver α = .89) and positive dyadic interaction (patient α = .86; caregiver α = .85). The analysis supported the DRS's construct, discriminant, and concurrent validity, as well as its reliability for both patients and family caregivers. <strong>Implications:</strong> Using the DRS to measure the impact of family care on positive and negative interactions inclusive of patients and caregivers can assist in identifying areas of difficulty and guide interventions to improve outcomes for both members of the dyad.</p>

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<author>Margaret Sebern et al.</author>


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<title>Psychometric Testing of the Self-Care of Heart Failure Index</title>
<link>http://works.bepress.com/margaret_sebern/4</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/4</guid>
<pubDate>Fri, 09 Nov 2012 07:30:17 PST</pubDate>
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	<p><strong>Background:</strong> Self-care is believed to improve outcomes in heart failure (HF) patients. However, research testing this assumption is hampered by difficulties in measuring self-care. The purpose of this study was to evaluate the psychometric properties of a revised instrument measuring self-care in persons with HF, the Self-Care of Heart Failure Index (SCHFI). The SCHFI is a self-report measure comprised of 15 items rated on a 4-point response scale and divided into 3 subscales.</p>
<p><strong>Methods and Results:</strong> Psychometric testing was done using data from 760 HF patients (age 70.36 ± 12.3 years, 51% male) from 7 sites in the United States. Reliability of the SCHFI (alpha .76) was adequate. Reliability of the Self-Care Maintenance subscale was lower than desired (alpha .56) but the reliability of the other subscales was adequate: Self-Care Management (alpha .70) and Self-Care Self-Confidence (alpha .82). Construct validity was supported with satisfactory model fit on confirmatory factor analysis (NFI = .69, CFI .73). Construct validity was supported further with significant total and subscale (all <em>P</em> < .05) differences between patients experienced with HF and those newly diagnosed, consistent with the underlying theory.</p>
<p><strong>Conclusion:</strong> Low reliability of the Self-Care Maintenance subscale was expected because the items reflect behaviors known to vary in individuals. The reliability and validity of the SCHFI are sufficient to support its use in clinical research.</p>

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<author>Barbara Riegel et al.</author>


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<title>Shared Care Dyadic Intervention: Outcome Patterns for Heart Failure Care Partners</title>
<link>http://works.bepress.com/margaret_sebern/3</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/3</guid>
<pubDate>Fri, 09 Nov 2012 07:30:15 PST</pubDate>
<description>
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	<p>Up to half of  heart failure (HF) patients are readmitted to hospitals within 6 months  of discharge. Many readmissions are linked to inadequate self-care or family support.  To improve care, practitioners may need to intervene with both the HF  patient and family caregiver. Despite the recognition that  family interventions improve patient outcomes, there is a lack of  evidence  to support dyadic interventions in HF. Thus, the  purpose of this study was to test the Shared Care Dyadic Intervention (SCDI) designed to improve self-care in HF. The  theoretical base of the SCDI was a construct called Shared Care. Shared  Care represents a system of processes used in family care to  exchange support. Key findings were as follows: the SCDI was acceptable to both care partners and the data supported improved  shared care for both. For the patient, there were improvements in  self-care. For the caregivers, there were improvements in  relationship quality and health.</p>

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<author>Margaret Sebern et al.</author>


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<title>Contributions of supportive relationships to heart failure self-care</title>
<link>http://works.bepress.com/margaret_sebern/1</link>
<guid isPermaLink="true">http://works.bepress.com/margaret_sebern/1</guid>
<pubDate>Tue, 18 May 2010 06:37:35 PDT</pubDate>
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	<p>Supportive relationships are known to improve outcomes for persons with heart failure (HF). Supporters may do so by improving self-care, but little is known about the influence of supportive relationships on HF self-care.</p>
<p>The purpose of this study was to explore background characteristics associated with supportive relationships, and the contribution of supportive relationships to HF self-care. The construct of shared care was used to operationalize supportive relationships. Shared care refers to a system of interpersonal processes (communication, decision making, and reciprocity) used in close relationships to exchange support. A cross sectional design was employed recruiting 75 HF dyads.</p>
<p>Older patients who perceived their health as better reported better shared care communication. Spouse dyads perceived more reciprocity in their relationship than non-spouse dyads. The process of patient shared care decision making was related to HF self-care maintenance (r=0.65) and self-care confidence (r=0.52). Patient communication (r=0.24) and reciprocity (r=0.41) were related to self-care confidence. Caregiver decision making (r=0.29) contributed to self-care maintenance; and caregiver decision making (r=0.37) and reciprocity (r=0.35) contributed to self-care confidence.</p>
<p>These findings suggest that augmenting the processes of shared care may be a valuable focus for future intervention research.</p>

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<author>Margaret Sebern et al.</author>


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