How Regulatory Frameworks Fight Cancer: Two Examples from the United States and the European Union

Louise G. Trubek, University of Wisconsin Law School
Thomas R. Oliver, University of Wisconsin School of Medicine and Public Health
Chih-Ming Liang, University of Wisconsin Law School
Matt Mokrohisky, University of Wisconsin School of Medicine and Public Health
Toby Campbell, University of Wisconsin School of Medicine and Public Health

Abstract

Integrated networks of doctors, patients, and hospitals are a major technique of cancer governance. They enable stakeholders to pool information and resources and achieve systematic learning. Two groups, the childhood cancer group in the US and the Europe Against Cancer initiative, are examples of network governance. Both demonstrate learning processes, production of new data and dissemination, financial support and engagement of all stakeholders. Why have these integrated networks been successful while so many others have failed? Because both are embedded within regulatory frameworks that ensure that networks work properly. Integrated networks are vulnerable when the frameworks fail to provide the necessary accountability, fairness and participation.