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BACKGROUND: Reperfusion therapy for acute myocardial infarction (AMI) is a time-dependent intervention that can reduce...
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BackgroundGenomic research is challenging the tradition of informed consent. Genomic researchers in the USA, Canada...
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Aims: Genomic research can produce findings unrelated to a study's aims. The purpose of this...
Huntington disease (HD) includes a prodromal phase with behavioral, cognitive, and motor function decline occurring...
It is unclear how genomic incidental finding (GIF) prospects should be addressed in informed consent...
Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk...
williams j.k., skirton h., barnette j.j. & paulsen j.s. (2011) Family carer personal concerns in...
PURPOSE: To provide nurse educators with an updated overview of advances in genetics and genomics...
AIMS: A family history of Huntington disease (HD) or receiving results of HD predictive genetic...
Genetic discrimination may be experienced in the day-to-day lives of people at risk for Huntington...
People who have tested positive for the expanded Huntington disease (HD) gene who are not...
Genetic discrimination-defined as the denial of rights, privileges, or opportunities or other adverse treatment based...
RATIONALE, AIMS, AND OBJECTIVES: Huntington disease (HD) is a progressive genetic brain disease leading to...
Health concerns and management strategies among families of young and middle-age adults with Huntington's disease...
AIM: This paper is a report of a study of the perceptions of family caregivers...
The basic aim of this study was to evaluate the current accepted standard clinical endpoint...
National Institutes of Health consensus and state-of-the science statements are prepared by independent panels of...
The purpose of this research was to evaluate the relationship between past traumatic events and...
PURPOSE: Known and suspected mutation carriers for hereditary nonpolyposis colorectal cancer are advised to have...
The purpose of this report is to describe caregiving by teens for family members with...
This qualitative study identified four life trajectories that influenced the decision in young women to...
AIM: This paper is a report of a study conducted to examine the emotional experience...
Cystic fibrosis carrier testing (CFCT) is among the first of the DNA tests offered prenatally...
PURPOSE: To examine adaptation by nonsymptomatic individuals who knew the results of a genetic test...
Research on families with Huntington Disease (HD) has primarily focused on adult decision-making surrounding predictive...
Potential discrimination from genetic testing may undermine technological advances for health care. Researching long-term consequences...
Focus group research reflects content contributed by participants and the influence of interactions among participants....
Manifestations of Huntington disease (HD) prior to clinical diagnosis are not well understood. This study...
Although clinical genetic testing is available for over 1,000 inherited disorders, consequences of predictive genetic...
PURPOSE: Analyze ethics, public policy, and education issues that arise in the United States (US)...
PURPOSE: To describe characteristics and professional roles of genetics nurses in advanced practice. DESIGN: A...
Conclusions: The US experience shows that nurses have made substantial progress in expanding their involvement...
The International Society of Nurses in Genetics began in 1988 as a venue for nurses...
Advances in genomic research are increasingly identifying genetic components in major health and mental health...
PURPOSE: To describe the experiences of disclosing genetic test results to biological family members among...
Although genetic discoveries affect nursing education, practice, and research, the use of genetic principles in...
Genetic factors influence the risk for disease, selection of treatments, and overall health of persons...
Growth disorders may be associated with difficult psychosocial adjustment, learning problems, and specific health risks....
With the ongoing and increasingly rapid pace of genetic discoveries, nurses must be able to...
With the mapping of the human genome has come the opportunity for nursing research to...
PURPOSE: To validate genetic counseling outcomes with a sample of genetics nurses from the United...
Human genome research has made it possible to identify the presence of gene mutations in...
Genetic aspects of mental health disorders are being identified through human genome and family research....
Identification of components of the Human Genome and their relevance to health and disease are...
Fragile X syndrome is the most common inherited condition causing mental retardation in males. Females...
PURPOSE: To describe the expectations of those seeking presymptomatic gene testing for Huntington disease (HD)....
A retrospective qualitative design was used to identify and compare the concerns, parents, teachers, and...
Genetic discoveries affect the practice of community health nurses. These nurses identify groups at risk...
Scientific information emerging from human genome research has significant implications for the practice of professional...
This qualitative study experiences of adults requesting genetic-carrier testing for four autosomal-recessive and X-linked-recessive disorders....
The purpose of this qualitative, exploratory study was to identify the concerns and resource needs...
Recent studies have suggested that expanded CAG/CTG repeats contribute to the genetic aetiology of schizophrenia...
The purposes of this project were to (1) develop a handbook on cystic fibrosis for...
New discoveries from genetic research may benefit children through increased knowledge of genetic causes of...
Discovery of genes associated with clinical disorders increases the ability of clinicians to more accurately...
Identification of mutations in the cystic fibrosis (CF) gene makes is possible to offer carrier...
Alterations in sexual maturation present parenting challenges for mothers of these children. The purpose of...
In the past, management of congenital absence of ovaries in women with Turner's syndrome (TS)...
Children with Turner syndrome (TS) are at increased risk for cognitive deficits and behavioral problems....
This study examined the effects of a verbal mediation strategy on three groups of subjects...
Recent developments in DNA technology mean that all individuals can be tested to identify whether...
Turner's syndrome (TS) is an abnormality of the X chromosome associated with cognitive and psychosocial...
Compared short-term verbal memory, sustained attention, and impulsivity in 13 children with Turner syndrome to...
Recent additions to genetic screening programs include DNA testing to identify carriers of certain disorders,...
The education of gifted and talented children : Report by the Senate Select Committee on...
What basic principles do we need to understand about teratogens? What counseling can we offer...
Genetic counseling attempts to help families understand genetic disorders and management options. Nurses support families...