Dr. Williams, Kelting Professor of Nursing, is a Genetics Nurse Specialist and is a
PNP and a Genetic Counselor. She is the Director of the Clinical Genetics Nursing
Research Postdoctoral Fellowship program, funded by the National Institute of Nursing
Research (NINR). 

Her research is funded by institutional grants, NINR, HRSA, and the Hi Q Foundation. It
focuses on the psychosocial impact of genetic testing on individuals and families, and
family caregiving for persons with Huntington disease. Dr. Williams also conducts
research on genetic discrimination. Current research projects also include communication
with health care providers and families regarding statewide newborn screening programs,
and the development of a work function measure for people with prediagnosed Huntington
Disease. She is the past president of the International Society of Nurses in Genetics and
is a consultant on numerous national and international projects to promote education and
practice of nurses regarding genetics. 

PhD in Educational Psychology, The University of Iowa MA, PNP in Nursing of Children, The
University of Iowa BSN, The University of Iowa Diploma in Nursing, Iowa Methodist School
of Nursing 

Articles

OpenURL

Individual genetic and genomic research results and the tradition of informed consent: Exploring US review board guidance (with C. Simon, L. A. Shinkunas, and D. Brandt), Journal of Medical Ethics (2012)

BackgroundGenomic research is challenging the tradition of informed consent. Genomic researchers in the USA, Canada...

 

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Researcher and institutional review board chair perspectives on incidental findings in genomic research (with Sandra Daack-Hirsch, M. Driessnack, Nancy Downing, L. Shinkunas, D. Brandt, and C. Simon), Genetic Testing and Molecular Biomarkers (2012)

Aims: Genomic research can produce findings unrelated to a study's aims. The purpose of this...

 

OpenURL

Couples' coping in prodromal Huntington disease: A mixed methods study (with Nancy Downing, A. L. Leserman, and J. S. Paulsen), Journal of Genetic Counseling (2012)

Huntington disease (HD) includes a prodromal phase with behavioral, cognitive, and motor function decline occurring...

 

OpenURL

Informed consent and genomic incidental findings: IRB chair perspectives (with C. M. Simon, L. Shinkunas, D. Brandt, Sandra Daack-Hirsch, and M. Driessnack), Journal of Empirical Research on Human Research Ethics (2011)

It is unclear how genomic incidental finding (GIF) prospects should be addressed in informed consent...

 

OpenURL

Development of the HD-Teen Inventory (HD-TI) (with M. Driessnack, J. J. Barnette, K. J. Sparbel, and J. S. Paulsen), Clinical Nursing Research (2011)

Adolescents, who have a parent with Huntington Disease (HD), not only are at genetic risk...