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Article
On the Importance of Intellectual Property Rights for E-science and the Integrated Health Record
Health Informatics Journal. Volume 14, Issue 2 (2008), p. 95.
  • Giuseppina D'Agostino, Osgoode Hall Law School of York University
  • Chris Hinds
  • Marina Jirotka
  • Charles Meyer
Document Type
Article
Publication Date
1-1-2008
Keywords
  • eDiaMoND case study,
  • e-health,
  • integrated health record,
  • intellectual property rights,
  • medical databases
Abstract

An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record.

Creative Commons License
Creative Commons Attribution-Noncommercial-No Derivative Works 4.0
Citation Information
D'Agostino, Giuseppina et al. "On the Importance of Intellectual Property Rights for E-science and the Integrated Health Record." Health Informatics Journal 14.2 (2008): 95.